2

A multi-site pilot study of a parent-centered tool to promote shared decision-making in hypospadias care

Using a user-centered design approach, we conducted a two-site pilot study to evaluate a decision aid (DA) website, the Hypospadias Hub, for parents of hypospadias patients.

Family Care Coordination in the Children’s Hospital: Phases and Cycles in the Pediatric Cancer Caregiving Journey

When a child is hospitalized with a serious illness, their family members must process emotional stress, quickly absorb complicated clinical information, and take on new caregiving tasks. They also have to coordinate with each other and with other …

An mHealth App to Support Caregivers in the Medical Management of Their Child With Cancer: Co-design and User Testing Study

Caregivers face new challenges and tasks when their child is diagnosed with cancer, which can be overwhelming. Mobile technology has the capacity to provide immediate support at their fingertips to aid in tracking symptoms, managing medication, and …

Ask the parents: Testing the acceptability and usability of a hypospadias decision aid

In previous work, we engaged key stakeholders to create a web-based decision aid (DA) prototype to facilitate shared decision making about hypospadias. The study's objective was to use a human-centered design approach to assess the DA's …

There’s a problem, now what’s the solution?”: suggestions for technologies to support the menopausal transition from individuals experiencing menopause and healthcare practitioners

To elicit novel ideas for informatics solutions to support individuals through the menopausal transition. (Note: We use “individuals experiencing menopause” and “experiences” rather than “symptoms” when possible to counter typical framing of …

Parental Acceptance of Children’s Storytelling Robots: A Projection of the Uncanny Valley of AI

Parent–child story time is an important ritual of contemporary parenting. Recently, robots with artificial intelligence (AI) have become common. Parental acceptance of children’s storytelling robots, however, has received scant attention. To address …

Jam Today, Jam Tomorrow: Learning in Online Game Jams

Game jams, which are game creation events in which developers design and build a game over a short period of time, have been shown to support participatory, active STEM learning. Game jams have expanded from their origins as physically co-located …

Informational Practices of Postacute Brain Injury Patients During Personal Recovery: Qualitative Study

The effects of brain injury, structural damage, or the physiological disruption of brain function last far beyond initial clinical treatment. Self-tracking and management technologies have the potential to help individuals experiencing brain injury …

Watch Me Code: Programming Mentorship Communities on Twitch.Tv

Live streaming-an emerging practice of broadcasting video of oneself in real time to an online audience-is often used by people to portray themselves engaged in a craft such as programming. Viewers of these 'creative streams' gather to watch the …

Temporal Data in a Health Self- Management Application