2022

Family Care Coordination in the Children’s Hospital: Phases and Cycles in the Pediatric Cancer Caregiving Journey

When a child is hospitalized with a serious illness, their family members must process emotional stress, quickly absorb complicated clinical information, and take on new caregiving tasks. They also have to coordinate with each other and with other …

”I feel like I need to split myself in half”: using role theory to design for parents as caregiving teams in the children’s hospital

When their child is hospitalized, parents take on new caregiving roles, in addition to their existing home and work-related responsibilities. Previous CSCW research has shown how technologies can support caregiving, but more research is needed to …

Designing for Families as Adaptive Systems: Collaborative Emotional Support and Resilience in the Children’s Hospital

When a child is admitted to the hospital with a critical illness, their family must adapt and manage care and stress. HCI and Computer- Supported Cooperative Work (CSCW) technologies have shown the potential for collaborative technologies to support …

An mHealth App to Support Caregivers in the Medical Management of Their Child With Cancer: Co-design and User Testing Study

Caregivers face new challenges and tasks when their child is diagnosed with cancer, which can be overwhelming. Mobile technology has the capacity to provide immediate support at their fingertips to aid in tracking symptoms, managing medication, and …

Ask the parents: Testing the acceptability and usability of a hypospadias decision aid

In previous work, we engaged key stakeholders to create a web-based decision aid (DA) prototype to facilitate shared decision making about hypospadias. The study's objective was to use a human-centered design approach to assess the DA's …